Hi, I am Devora and I would like to tell you a little about me. I have blue eyes, brown curly hair and am 30 years old. I was born with a rare brain disorder agenesis of the corpus callosum (ACC- missing the bridge between both halves of my brain) as well as missing brain fibers and misformed ventricals. I also have an extremely rare chromosomal anomoly with a translocation, for which chromosomal research is currently being done. Transfer of information from one hemisphere of the brain to the other occurs via the corpus callosum. ACC runs a complete spectrum of those not involved with any other medical conditions to others like me who have multiple involvements including a seizure disorder, small growth, scoliosis, hypotonia and global developmental delays.
My smile is radiant regardless of whatever medical complexities I have. I am a person first as is everyone abled in their own way. Due to many complex medical needs, I am unable to do very much without the help from nurses and family. However, we do not let my limitations stop me. Together we have created Devora’s Dream, the first incorporated microboard in Illinois. As part of the Illinois Association of Microboards and Cooperatives, a project of the Illinois Council of Developmental Disabilities , Devora’s Dream was established as a microboard to arrange services that will allow Devora and those like her to “live the life the individual wants to live.” A microboard allows an individual to have control over his or her support services and this lets Devora, her family and her friends work together to determine what is best for her. It helps the focus person achieve the highest quality of life by determining the best avenues in delivering needed services. Devora's Dream, Inc. is a licensed provider in the State of Illinois and serves to support and provide services to other families with loved ones having rare brain disorders and are abled in their own way to see the importance of developing the unique abilities of the individual involved and best self-directed system of support.
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